Family of Pittsburgh boy with degenerative muscle disease raising money for handicapped bus

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PITTSBURGH - Joey Szumigalski, 6, of Pittsburgh has a degenerative muscle disease similar to ALS.  He wasn't supposed to live past 2 years old.

Channel 11’s Courtney Brennan reported that it was remarkable to watch his mom, Natalie Dawson, care for him.  Dawson also has three other kids, and the family's minivan simply isn't cutting it anymore.

The family can't fit Szumigalski, his medical equipment and his brothers and sisters in the same vehicle.

“A regular, modified minivan is $30,000,” said Dawson.

The family got good news that a business was willing to sell them a handicapped-adapted bus for $5,000.  The family is now trying to raise the $5,000.

“I want him to experience getting into the vehicle just like all the other kids instead of us carrying him,” said Dawson.  "I would like to take the next step in his life so he doesn't feel like a baby."

This Sunday, a fundraiser will take place at the Emerald Gardens Garnet Court Pavilion at 2 p.m.

Click here to make an online donation.