Updated: 11:27 a.m. Thursday, July 26, 2007 | Posted: 4:44 p.m. Wednesday, May 9, 2007
PITTSBURGH —
She can't eat because she can't digest food. She suffers from a very rare and painful condition called chronic idiopathic intestinal pseudo obstruction.
Doctors don’t know what causes this rare condition and there is no cure.
Reid has been fed intravenously all her life, but longtime intravenous feeding can lead to liver damage and is life threatening.
Her parents hope doctors at Children’s Hospital in Pittsburgh can perform a small bowel transplant to correct her condition.
The family moved to Gibsonia from New Zealand earlier this year to be closer to the hospital and doctors they hope will save their daughter's life.
It’s a costly move, but the New Zealand government is paying for the treatment, which will cost as much as $1.6 million.
The family must wait for a suitable donor and they are unable to work because of visa restrictions.
Reid’s mother Jodi said, “It's a huge amount of stress both financially and on our family dynamics as well.”
It’s a move Jodi Reid said the family didn’t think twice about making.
"If we weren't prepared for the long haul we would not be here," she said.