Neighbors help 5-year-old with rare disease celebrate Halloween in May

CASTAIC, Calif. — Family and friends are helping a sick boy celebrate a special Halloween-themed birthday in May.

>> Watch the news report here

Carter Sarkar of Castaic, California, outside Los Angeles, has Sanfilippo syndrome, a disorder that prevents the body from properly processing sugar. The disease will slowly cause Carter to lose his motor skills and brain function until his body eventually shuts down, likely during his teenage years, KTLA reports.

On Sunday, Carter’s neighbors helped him celebrate his 5th birthday by allowing him to go door-to-door and trick-or-treat with his friends.

“That’s why we go all-out for everything we do because you don’t know if he’s going to be here next year or if he’s going to be able to say ‘Mom’ or ‘Dad’ next year or his sisters, so you just have to live for today and hope for tomorrow with him,” said mom Jennifer Sarkar.

The family started a crowdfunding account to raise money in hopes of finding a cure for Sanfilippo syndrome. If you would like to donate, click here.

Cox Media Group