Family of a girl battling rare disease asks for your help with well-wishes

Family of a girl battling rare disease asks for your help with well-wishes

Hospital bed (stock photo).

ERIE, Pa. — It’s called stiff person syndrome, and it affects one person out of a million. 18-year-old Kylie Allen-Kulyk is that one person.

According to Erie News Now, Kylie’s family asked the community to help fill her room with get well wishes. Her family said Kylie’s body rejected chemo treatments, and a ventilator had to be used to give her body a break.

Erie News Now reported Kylie is at UPMC Hamot in Erie, and her family hoped to have e-cards from the hospital’s website filling her room when she woke up.

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18-year-old Kylie Allen-Kulyk is battling stiff person syndrome, a condition that affects 1 in a million people. Kylie's familly needs your help to fill her room with get well cards.

Posted by Erie News Now on Thursday, May 2, 2019

According to Erie News Now, stiff person syndrome causes excruciating muscle spasms that can be strong enough to tear ligaments and break bones.

Kylie had been in the hospital for over 75 days since the start of the year.

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